FAMILIES STEP ONLINE TO SUPPORT KIDS WITH CONGENITAL HEART DISEASE

4 November 2020|Lifestyle| Off Comments off on FAMILIES STEP ONLINE TO SUPPORT KIDS WITH CONGENITAL HEART DISEASE|

GLENORCHY families joined the rest of the country in the annual HeartKids Two Feet & A Heartbeat Charity Walk on Sunday 18 October to help raise funds for kids affected by congenital heart disease.

Two Feet & A Heartbeat took place virtually in Tasmania, allowing participants to walk in their local neighbourhood to support Australian kids and families affected by the life-long condition.

The event also paid tribute to those who had lost their lives to congenital heart disease, affectionately known as ‘Heart Angels’.

The Filisetti family from Glenorchy were one family that showed their support during the walk, with Haddie Filisetti, aged four months, suffering from the condition.

During mother Brooke Filisetti’s 12 week scan, she received the news that their little bundle of joy had a form of congenital heart disease.

The diagnosis was confirmed when Haddie was five weeks old.

“Haddie has had two surgeries in her short four months of life, going through these surgeries produced an absolute whirlwind of emotions, and the additional hardship of COVID has been really tough,” Ms Filisetti said.

“HeartKids have become our second family, it’s so reassuring to have a likeminded community that understands what we are going through, especially during the really tough times.

“We were delighted to be ambassadors for Hobart.”

Due to the ongoing COVID-19 situation, HeartKids embraced virtual technology to allow everyone from anywhere to participate, with there being an exciting program of events that was available online.

This included a live cross to a Welcome to Country and memorial service, and a series of online activities and a music playlist to get everyone moving.

Two Feet & A Heartbeat featured two fitness levels for people to walk – four kilometres in honour of the four lives lost each week to congenital or acquired heart disease, or eight kilometres in recognition of the eight babies who are born with the disease each day.

“Raising funds for HeartKids provides families with greater access to support services and programs that help families feel less isolated, navigate their new normal and build resilience, so they are less reliant on the medical system,” HeartKids’ Holly Williams said.

“Many families face financial strain at no fault of their own and COVID-19 has made it especially hard.

“HeartKids is here to make a difference, giving families a helping hand for the wellbeing of their child and the wider household.”

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About the Author: Glenorchy Gazette

The Glenorchy Gazette is your monthly community newspaper, reaching over 24,000 homes and businesses in the Glenorchy municipality. It is the product of Nicolas Turner, Justine Brazil, Ben Hope, Simon Andrews, Tobias Hinds and guest contributors, with support from advertisers.

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