Entertainers to ride the state for Eddie

5 May 2021|Community News| Off Comments off on Entertainers to ride the state for Eddie|

LOVED entertainers John X and Colin Dean will be jumping on their Vespa motor scooters with a bunch of friends in November this year to raise money for a young Tasmanian suffering from an extremely rare condition.

Ride for Eddie will see the team travel around 1,500 kilometres over 10 days around the state on scooters, stopping in towns along the way to entertain locals.

Edward ‘Eddie’ McDonald was born in 2017 and was diagnosed with Pontocerebellar Hypoplasia (PCH) Type 4, the only known case in the world.

The condition is so rare that there are only five cases of other types of PCH currently diagnosed in Australia.

Eddie feeds through a gastric tube, doesn’t talk and will likely never be able to use his hands.

His condition also means that he will never walk, so a wheelchair will be a big part of his life.

Colin Dean said as he gets older, Eddie will be too big to lift in and out of the car, so the riders will be raising funds to purchase a vehicle that is converted to take a wheelchair hoist as well as other mobility needs.

The target for the appeal is $85,000.

“As his grandfather, I would love to purchase the vehicle myself, but that isn’t possible,” Mr Dean said.

“I have a Vespa, which means wasp in Italian, and thought riding around Tasmania with a bunch of friends to take the sting out of Eddie’s problems and raising money for the vehicle was the next best option.

“We will be joined on the trip by crack support vehicle driver Andrew Colrain to perform as ‘Croon’ in pop-up concerts as we travel.”

The team will be warming up with regular group rides to regional towns in the months leading up to the event and would love Vespa riders to join them in the fun.

Ride for Eddie has partnered with Variety The Children’s Charity and all tax deductible donations will be through their online facility.

For more information, to follow progress or to donate, visit https://tasfundraising.variety.org.au/support-a-fundraiser/ride-for-eddie or the Ride for Eddie Facebook page.

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The Glenorchy Gazette is your monthly community newspaper, reaching over 24,000 homes and businesses in the Glenorchy municipality. It is the product of Nicolas Turner, Justine Brazil, Ben Hope, Simon Andrews, Tobias Hinds and guest contributors, with support from advertisers.

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